I realized this past week many of you keep up with me here alone, so I am sorry I haven’t updated in a while. But no news is good news, right?
RIGHT!
I know of and hear of a time when Imbruvica stops working for CLL patients. Again, it’s my dark cloud that follows me... “when will it stop working?” as I frantically check my lymph nodes for unwanted growth. It’s paralyzing at times, yet it’s also relieving at times - because
The.
Meds.
Are.
Working.
I feel better than ever. I have more energy than I can remember having. My immune system is better. I used to have a sinus infection [like, the real deal... oral antibiotics coupled with steroids and an antibiotic shot... errrytime] about every 4-12 weeks for as long as I can remember. Since Imbruvica, I’ve had none. {***knock on wood***}
I know, and very much realize, there is a day this medicine may stop doing its job. But for today, I feel good. My CLL is controlled. Can I ask for anything more? No, I cannot.
I go back to MD Anderson December 5. I will post another update after my visit.
Once again, thank you for loving and supporting me!
A special shout out to my CLL buddies. I am so thankful to have found you... and that I’m not alone with this cancer as a “young” one —> David Spivak and Sabrina Foxworthy (among others!), you are the greatest lifeline!
